Michael Capolongo is a five-year old who dotes on his little sister, Victoria Rose, antagonizes the family dog and idolizes his older brother, Bobby. Michael wants to be just like him. But even as he learns new ways to imitate Bobby, the increasing evidence of his young body’s betrayal is impossible to ignore. Michael has Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy is the leading fatal genetic disorder worldwide. It affects 1 in 3,500 boys.
Duchenne Muscular Dystrophy is caused by the body’s inability to make a protein called dystrophin, which is an essential ingredient in muscle cells that acts as a shock absorber. Without this protein the muscle cells become weak and eventually die. To date there is no cure for Duchenne. By age 12, boys with Duchenne are usually wheelchair-bound. Ultimately, Duchenne affects the heart and lungs, leading to death by the early 20s.
Michael’s father is an NYPD Sergeant and his mother is a neonatal ICU nurse.
You can sponsor Michael’s Cause at the 2012 NYC Marathon
On Sunday, November 4, 2012, Keith Christensen will run the NY City Marathon for Michael’s Cause. He has been sponsored by Richmond County Savings Bank, which will be donating $100 a mile (totaling $2,620). You can help sponsor Keith’s run and help Michael’s Cause find a cure for Duchenne Muscular Dystrophy by clicking here.