BEGIN:VCALENDAR VERSION:2.0 PRODID:-//September 11th Families Association - ECPv6.3.5//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:September 11th Families Association X-ORIGINAL-URL:https://911families.org X-WR-CALDESC:Events for September 11th Families Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20120311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20121104T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20121104 DTEND;VALUE=DATE:20121105 DTSTAMP:20240329T020716 CREATED:20121009T213846Z LAST-MODIFIED:20121009T213915Z UID:4022-1351987200-1352073599@911families.org SUMMARY:Sponsor Michael's Cause at NYC Marathon DESCRIPTION:Michael Capolongo is a five-year old who dotes on his little sister\, Victoria Rose\, antagonizes the family dog and idolizes his older brother\, Bobby. Michael wants to be just like him. But even as he learns new ways to imitate Bobby\, the increasing evidence of his young body’s betrayal is impossible to ignore. Michael has Duchenne Muscular Dystrophy. \nDuchenne Muscular Dystrophy is the leading fatal genetic disorder worldwide. It affects 1 in 3\,500 boys. \nDuchenne Muscular Dystrophy is caused by the body’s inability to make a protein called dystrophin\, which is an essential ingredient in muscle cells that acts as a shock absorber. Without this protein the muscle cells become weak and eventually die. To date there is no cure for Duchenne. By age 12\, boys with Duchenne are usually wheelchair-bound. Ultimately\, Duchenne affects the heart and lungs\, leading to death by the early 20s. \nMichael’s father is an NYPD Sergeant and his mother is a neonatal ICU nurse. \nYou can sponsor Michael’s Cause at the 2012 NYC Marathon \nOn Sunday\, November 4\, 2012\, Keith Christensen will run the NY City Marathon for Michael’s Cause. He has been sponsored by Richmond County Savings Bank\, which will be donating $100 a mile (totaling $2\,620). You can help sponsor Keith’s run and help Michael’s Cause find a cure for Duchenne Muscular Dystrophy by clicking here. URL:https://911families.org/event/sponsor-michaels-cause-at-nyc-marathon/ CATEGORIES:Fundraiser END:VEVENT END:VCALENDAR